I’ve Been a Bad Blogger October 31, 2007
I know. I suck. Things have just been a little crazy around here, that’s all.
Mostly it’s been the nonstop poop-a-thon that’s been keeping me busy. Yeah, I normally don’t blog about poop, because well, it’s poop. It’s not like I haven’t had the material with all of the food intolerance stuff, but it’s just not that great of a blog topic. However, the day after Adam’s MRI things went downhill in the poop department in a bad way. He’s averaging 7-10 times a day. Every day. And it’s green. Yeah, not good.
It really sucks, because he had been doing so well in the GI department lately until this. We were even going to attempt solids again. Now that’s obviously going to have to wait until he recovers from whatever is going on right now.
He had his rescheduled 9 month check up on the 19th, and that was my first order of business with the doctor. The pediatrician said he looked fine and that it was probably a virus that could last up to 3 weeks. If he wasn’t better at the 3 week mark, bring him back. Well, it looks like we’ll be heading back to the doctor on Friday unless a miracle occurs between now and then.
The good news from his check up was that the ped said not to worry about the Diabetes insipidus marker, because he would be showing symptoms if he had it. Babies with DI are failure to thrive babies, and Adam definitely doesn’t fit that bill at 29″ tall and 20 lbs, 7 oz. So, that’s a relief.
We’ve had some really good news on the helmet front, too. A week ago Adam had another head scan done. His asymmetry measurement went from 11.9mm at the previous scan (and from 16.5mm at the beginning) to 7.4mm! What a difference going to the second helmet has made. We’ve seen the same amount of correction in the first 3 weeks he’s worn the second one as the entire 8 weeks he wore the first one. His next head scan is scheduled for 3 weeks from today, and then he should be done. It will be so nice to be all finished by the holidays.
His crazy eye is still crazy. I talked to his ophthalmologist shortly after his MRI was done, and we went over the possible causes/types of nystagmus now that a tumor has been ruled out:
1) Spasmus nutans. This is the benign form that will resolve on its own usually around the age of 3-4. There are no vision problems or other major effects from this type, although some kids will develop a head bob in response to the nystagmus.
2) Congenital motor nystagmus. This one usually doesn’t result in major vision problems either, but it doesn’t go away. It’s just something that will stay for life. Some kids will develop a strange head position in response to it that can be corrected surgically (the postion, not the nystagmus).
2) Retinal problems. There are several types that could fall under this category, and this is where the major vision problems occur. Obviously we hope he doesn’t have this kind.
The ERT test can be done to help rule out retinal problems, but there’s only one place that does it in Houston and the anesthesia that’s used there isn’t great for babies. Since there’s no treatment for it anyway, it doesn’t make sense to put him through that right now.
Once he’s 2 or 3 years old he’ll be able to have a sit lamp exam done by the eye doctor which will give us a lot more info on his vision and on what the retinas, optic nerves, etc look like. The ped ophthalmologist wants to see us back in 3-4 months, but we’re basically taking a wait and see approach as long as he doesn’t develop any new problems.
The sleep issues continue now with added fun from the poop-a-thon. The fact that he seems to be one of the slowest teethers in history doesn’t help either. Tooth #4 is taking its dear sweet time coming in, and it’s driving Adam crazy. The helmet doesn’t help matters either. I have to laugh (it’s either that or cry) when I hear people complaining about their child waking up once or twice overnight. Adam woke up 6 times last night. Yeah, I’m a zombie.
So, I guess that’s the long and the short of it these days. Adam is a crawling fool and doesn’t like to stay in one spot for long. It’s so fun to watch him develop new skills. He’s big into pulling up now, too.
Now if we could just get what ever is going on with his tummy under control and have this tooth come in we’d be in pretty good shape. Oh, and more than a couple of consecutive hours of sleep every now and then couldn’t hurt either.
- Posted in : our main man
- Author : amanda
Comments»
It’s a good thing he’s so cute!
Poor, poor baby. Hope he feels better soon!
I feel your pain in the sleep department, A was sick and learning all sorts of new stuff from 5.5 mo to 7.5 months - didn’t sleep til 8ish months. Hope that settles down and quick!
Let’s go spasmus nutans! Doesn’t that sound like an alien or something? Hope you can catch a break with this one and the virus miraculously disappears so you don’t have to bring him to the doctor.
Ask the doc about C. Diff!
wow congrats on the great helmet progress! that is awesome news sorry he’s gearing up for the poop olympics hope that ends soon for you all.
Sorry about the poop… seems to me with 3 in diapers that is all I ever do/smell! Hope it clears up soon. Glad to hear on the progress with the helmet. Wishing you the best outcome with the eye thing.
Take care
Glad to hear about the progess, hope everything else will get better soon!