Thanksgiving Trip and Medical Updates Galore November 30, 2007
We seemed to have managed to survive our first overnight road trip. Adam had a bit of a tough time, though, with the long hours in the car on top of having a food reaction and cutting tooth #7 while we were away from home.
On Monday I took him to see the GI, and that was a big disappointment. We had to wait an hour to be seen and then all I got from the doctor was a talk about formula. Adam’s growth has been leveling out some, and the doctor made me feel guilty about that. I wanted some suggestions on how to proceed with solids with him, but the GI totally passed the buck to the allergist. I left there in tears feeling inadequate and frustrated.
I called Adam’s pediatrician that afternoon, and thankfully he made me feel much better about the situation. He said that I didn’t need to rush out and order formula (he’d have to be put on Neocate, a mucho expensive amino acid formula). He suggested that we run some blood tests just to make sure Adam’s nutrition level, iron levels, and basic blood chemistry looked ok. He also added tests to rule out the Diabetes Insipidus now that Adam’s weight is plateauing some. He said as long as all of that came back ok then I should just keep breastfeeding Adam without supplementing and keep working on getting him on solids.
We took him to the hospital to get his blood drawn on Tuesday, so they could run all of those tests. That was not fun, as they actually had to draw blood from the tiny vein in his arm.
We got the results back this week from all of the tests but one, and they were all normal. He’s showing no signs of DI, and his electrolytes, white blood cells count, hemoglobin levels, and a myriad of other things all look good. We should get the result back of the one last test that had to be sent out next week sometime. I’m also going to be bringing Adam in for a weight check in a week just to make sure we’re ok there.
Thankfully in addition to the good test results, we’ve also been able to figure out the tummy stuff. It turns out that he’s been reacting to chicken. We’re also pretty sure that he’s been reacting to something in the chili I’ve been eating, either the beans or tomatoes. I retrialed the chicken and had a big confirmation but have not retrialed beans or tomatoes yet. We feel that it’s more important to start working on solids again than trying to figure that one out, so all three are on the forbidden list for now. Obviously that cuts into my diet a lot, especially now that the only meat I can eat is pork, but what ya gonna do.
The really good news is now that I’ve taken all of those out of my diet, he’s doing so much better. So much so that we’ve started him on some rice cereal and are keeping our fingers crossed that things go ok.
Adam had yet another doctor’s appointment on Tuesday to see the specialist that he sees for his torticollis and plagio, and he’s officially graduated! He still has a slight tilt, but it should improve as he gets stronger now that he’s more mobile.
Adam also started cruising last weekend, and that’s fun to watch. He also learned the art of throwing a temper tantrum, the little goober. And he waved goodbye for the first time today. He’s just learning new stuff all the time.
- Posted in : our main man
- Author : amanda
Comments»
Great news! He’s such a cutie. You’re doing a fantastic job.
My son had torticollis as well and after his treatment was finished, still had a tilt that I certainly noticed, but it really did seem to go away on it’s own. He’s five now and I never notice (and I was obsessive about it!).
I’m a long-time reader, but I’ve only commented a few times. I just wanted to say that I think that you are doing a wonderful job with Adam’s allergy issues - your committment to breastfeeding and the diet it requires is awesome. That GI guy seems like a royal JERK. I know quite a few women who exclusively breastfed (no solids for various reasons) until their kiddos were 1, with no issues.
He looks wonderfully healthy and happy to me!
Yay Adam. And congrats to you to being so dedicated, it is sad that anyone could make you feel like less than a fantastic job. I hope the feeling was very temporary.
How anyone could make you feel you’re not doing the right thing after all you’ve done with your diet astonishes me. I’ve found docs are all too keen to suggest formula at any hint of a feeding problem. Then I found out that in the UK they get a total of 1 hours instruction on breast feeding, and it all got a lot clearer.
So glad he’s doing better, still feeling bad for YOUR lack of food!
He is such a gorgeous boy, and you are such a great mom to him.
I’m so sorry your diet has become so extremely limited–that has to be so difficult. But at least it sounds like bacon is still on the table? :)
Delurking to say, your little boy is just too adorable for words. And I really admire your fortitude. Keep your own counsel and go for second opinions as you wisely have been doing! Good luck with little guy.
Sorry the GI was so unhelpful. Glad Adam checked out well on all his blood work. Good luck with the rice cereal feedings.
I don’t know how you keep up with it all! But the mischievous look on his face certainly tells me why. :)
Congrats on graduating and all of the other good news you’ve gotten recently. Glad to hear that all of his tests look good and he’s doing so well.
Good luck as you introduce the solids, and may things just keep getting better and better :-)
I’m so impressed with all you do! Love the pic!
So glad all is checking out okay. Don’t know how you manage the diet thing also. Love y’alls picture, love it!
Amanda, I’m so glad the tests came back okay. You have not had an easy time of things, my dear! But Mr. Adam is so cute, and most obviously worth all of the trials and tribulations, I know you’d go to the ends of the earth for him.
Woohooo on the graduation and physical developments, isn’t it amazing to see how much they learn, so quickly?