That Explains That January 3, 2008
We finally got some real answers from today’s endoscopy. They weren’t answers I was expecting but answers nonetheless.
While Adam was recovering from the anesthesia his doctor went over what he saw with us. He walked us through the digestive tract, saying that his esophagus looked healthy as well as his stomach. Then we found out the real finding. He said that the opening from Adam’s stomach to small intestine is very, very small. So small, in fact, that the GI couldn’t even fit his 9mm diameter scope through it. So, that explains why Adam’s been able to tolerate breastmilk but not solid food.
The GI also took biopsies of various areas to check for an eosinophilic disorder. We’re hoping that the structural issue is the only one we’re dealing with, but we’ll find out for sure when we get the results back early next week.
So, the next step is for Adam to have an upper GI series done so the doctor can see exactly what’s going on in there. I just got a call about that, and we’re having it done tomorrow morning.
Then based on the upper GI results the doctor will be able to tell if the opening from the stomach to small intestine can be opened with a balloon or whether it will have to be surgically opened. We still have a couple of procedures ahead of us, but at least we now know what the problem is.
Adam’s protein intolerances appear to be a separate issue, but as long as my elimination diet keeps doing the trick he should be able to keep breastfeeding as long as the biopsies come back ok. Such a relief.
Adam was a total trooper as usual today. He woke up very cranky from the anesthesia and has a sore throat now, but he’s hanging in there. I’m sure he’ll be back to his old self in no time.
I can’t help but feel guilty that we didn’t find this stuff out earlier. I know that I don’t possess a crystal ball, but I would love to have spared him some of that pain. I’m glad we have a plan to move forward now, though. Plans are very good things indeed.
- Posted in : our main man
- Author : amanda
Comments»
I’m really glad that things went better than you’d hoped. My friend’s son had the same thing with his stomach opening and had an uneventful surgery and healed up quickly and all his reflux went away. I hope the biopsies come back clean, and also that you can find some solution for the protein intolerance.
So glad that things are moving forward and that you are able to get your little guy the help he needs! I hope that there are no more issues involved and the current thing can be corrected without surgery. Will be on the lookout for an update!
That sounds like great news (all things considered) . . . good luck as you move forward.
Wow, that is something I have never heard of! I am so glad to here that you will get to continue to BF and that there should be a way to fix this issue. Don’t be to hard on yourself; hindsight is 20/20. This sounds like something pretty rare. Let us all know how it goes tomorrow.
I’m glad you got some answers and fingers crossed that it’s just structural. I guess if a balloon can fix it surgery can be avoided? I hope tomorrow’s procedure goes smoothly! There is nothing more stressful than one’s child’s medical issues and I hope this is all behind you very soon.
So glad you got some answers today. Adam is such a trooper.
I am happy to hear that you won’t have to wean him early. I hope that all goes well tomorrow and the biopsies come back clean!
I have said it before but say it again - you are an amazing mother. Don’t feel bad about not figuring this out sooner - how could you have known? We never want our little one to hurt and beat ourselves up when we find out something new thinking we should have known. You are doing everything you knew to do for Adam, however, sometimes life still throws us these curve balls. The important thing is you have a plan now and I pray that everything will be better soon! :)
Keep us posted and give Adam a huge hug for being so good through it all. You have an extraordinary boy (but you know that already! ;))
I feel relieved to know what’s wrong so I can only imagine how you must feel. I’ll keep hoping they can just dilate it and he won’t need surgical intervention. Great news that he’ll be able to continue breastfeeding!
Amanda, I hope the biopsies give you good news and that the opening can be fixed with the balloon. Good luck at tomorrow’s upper GI appt. You are such a great mom to do all that you do for Adam.
Glad to hear there are some answers- I hope he gets some relief soon.
Man oh man, Amanda! Is it pyloric stenosis? I’m so suspicious of that since a friend’s baby boy had it, but it happened much earlier, and it was much more dramatic than Adam’s situation, don’t beat yourself up! Sounds like there are a lot of things going on, poor tot!
I hope the biopsies are normal, and hope the condition is easily fixed.