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Good News and Bad News on the GI Front January 24, 2008

Adam had his second endoscopy today. The plan was for the GI to go in with the scope and see if his pylorus looked the same as last time. If so, he would use the balloon to stretch it open some. There was a chance that it was spasming last time, but the GI didn’t think that was the case.

Sure enough, the pylorus was still so small that the scope couldn’t fit through. The GI stretched it with the balloon from 8mm to 12mm as it can only be stretched so much at once safely. The opening is still small for someone Adam’s age, so he may need the procedure repeated down the line, but only time will tell.

Once the GI dilated the pylorus he was able to get into the duodenum unlike last time, so he went ahead and took biopsies there. We should get those results early next week.

So, that’s the good news. We’re very glad things went so well. Adam had a tough time in recovery again this time but was given some Morphine which helped a lot.

Now onto the not so good news. Adam is having a bad GI reaction to the Prevnar and/or Varicella vaccinations he got at his 12 month check up two weeks ago. This is beyond frustrating to us. The GI said that Adam’s intestine looked inflamed which is no surprise given what’s been going on.

So, even though his pylorus has now been opened up some we’re still on hold on the solid food front at least temporarily. We need to wait until things settle down with his little system, and the GI wants us to wait until we get the biopsy results back as well. We’re hoping so much that things improve soon and that those biopsies come back normal, so we can keep moving forward.

Comments»

1. Jenn - January 24, 2008

I really hope you all catch a break soon. I’m thinking of you.

2. Jamie - January 24, 2008

Poor little guy. Nothing can just be easy and work can it? I hope something works out for all of you soon.

3. lisa - January 25, 2008

I too hope this is all over soon. Poor Adam! And poor mom and dad! Fingers crossed for good biopsy results.

4. Jen - January 25, 2008

I’m thinking of you guys and hoping that there are some calm days coming for you soon. I can only imagine how hard it is to see your poor little guy going through this. My fingers are also crossed that things go well and the biopsy results are good. Hang in there!

5. T - January 25, 2008

Holy God Amanda - enough is enough, that poor baby - shit. And poor you and Dan. Damn! Dunno, just shaking my head and hoping that everything works out for Adam - and no more procedures until tonsils!

And I LOVE WINSTON! His coat is just like my old Nick’s - as in - beautiful! That’s great that he’s fitting in and so nice you have a friend for Salvador (even though he might not like it now - they’ll be curled up together in no time I’m sure - make sure to tell me if I’m wrong and they hate each other - haha).

6. Carrie - January 28, 2008

Amanda, glad to hear the procedure is over and they could stretch it a bit–that’s good news!! I really hope it ends up making a big difference. The recovery and the shot reactions are a nightmare though–I agree with the pps–poor all of you :( Well, here’s to another step finished with. Carrie (IVFC)

7. ovagirl - January 28, 2008

Poor little darling boy, and his family. I’m glad there is some progress here Amanda and so sorry about the bad reaction. As if there wasn’t enough going on…

8. waiting line - February 5, 2008

Awww, poor guy. You’re a trooper too Amanda, that sounds incredibly stressful (says a new mom that pratically sobbed when told her son had to under a simple non-invasive barrium swallow…jeesh). I truly hope things improve on the GI front and biopsies come back clear.

9. Shelley - February 17, 2008

Amanda, I realize this post is a couple of weeks old. I’m hoping all is well with you guys and that things are on the path to resolving themselves.

Oy, what an awful time of it poor little Adam has had. I am saying a prayer for him …and you guys.

xo,

Shell

10. Shop Girl - February 21, 2008

Thinking of you and Adam.